International Center of Mental Health Policy and Economics

Third Meeting on Patient Reported Outcomes and Person Centered Care in Mental Health

OUTCOMES IN MENTAL AND ADDICTIVE DISORDERS:
PERSONAL, CLINICAL, SOCIAL PERSPECTIVES

American Association for the Advancement of Science
Washington D.C., September 23-25, 2016

 

General Information

 
SPONSORSHIP

Section on Mental Health Economics
World Psychiatric Association (WPA)


SCIENTIFIC AND ADVISORY BOARD

Gregory Bloss
National Institute of Alcoholism and Alcohol Addiction (NIAAA)

Laurent Boyer
Aix-Marseille University

Philip Burgess
University of Queensland

Juan Manuel Cabases
University of Navarra 

June Cai
Walter Reed National Military Medical Center 

David Cella
Northwestern University 

Steve Clauser
National Cancer Institute (NCI) 

Bruce Cuthbert
National Institute of Mental Health

Catherine Deguines
French Regulatory Agency for Medical
Devices (AFSSAPS) 

Paolo Del Vecchio
Substance Abuse and Mental Health Services
Administration (SAMHSA) 

Lisa Dixon
Columbia University

Ann M. Doucette
George Washington University 

Michael Drummond
University of York 

Sarah Duffy
National Institute on Drug Abuse (NIDA)

Howard H. Goldman
University of Maryland at Baltimore

Willian A. Hargreaves
University of California at San Francisco 

Thomas Hilton
National Institute of Drug Abuse (NIDA) 

Dominic Hodgkin
Brandeis University

Jeanette M. Jerrell
University of South Carolina 

Anthony F. Lehman
University of Maryland at Baltimore

Cathy Mihalopoulos
Deakin University

Massimo Moscarelli
International Center of Mental Health Policy and Economics (ICMPE)

William E. Narrow
Saint Elizabeth Hospital 

Grayson S. Norquist
Emory University

William T. Riley
NIH Office of Behavioral and Social Sciences Research 

Michael Rowe
Yale University

Pedro Ruiz
University of Miami

Ella Rytik
First Psychiatric Hospital, Moscow

Luis Salvador-Carulla
University of Sydney

Mark Salzer
Temple University

Pratap Sharan
All India Institute of Medical Sciences, New Delhi 

Steven S. Sharfstein
Sheppard Pratt Hospital 

Martha Shumway
University of California at San Francisco 

Judit Simon
Medical University of Vienna

John A. Talbott
University of Maryland at Baltimore 

George Jay Unick
University of Maryland at Baltimore 

Benedetto Vitiello
National Institute of Mental Health (NIMH) 

Thomas Wise
John Hopkins University 

 Alexander Young
 UCLA

 

BACKGROUND

Patient Reported Outcomes measurement research aims to provide evidence of a treatment benefit from the patient perspective and is crucial in the development of recovery oriented policies aimed to enable patients to decide over time about personally meaningful interventions of prevention, treatment and rehabilitation. This research can help measure symptom severity and impact, assess response to treatment, facilitate tailored interventions, and enhance therapeutic adherence to personally meaningful treatment by indicating what really matters most to the patient from his/her perspective.

Patient Reported Outcomes  (PRO) research and related advances in measurement technology have grown extraordinarily. The US National Institutes of Health (NIH) have made a major scientific and financial investment in this area with projects like The Patient-Reported Outcomes Measurement Information System (PROMIS) http://www.nihpromis.org/. Patient Reported Outcomes measurement research aims to provide evidence of a treatment benefit from the patient perspective. Patient Reported Outcomes measures can also be used  in clinical trials for treatment benefit claims in labeling. The Food and Drug Administration (FDA) has defined Patient Reported Outcomes measurement: “A measurement based on report that comes directly from the patient (i.e. study subject) about the status of a patient’s health condition without amendment or interpretation of the patient’s response by a clinician or anyone else. A Patient Reported Outcomes can be measured by self-report or by interview provided that the interviewer records only the patient’s response” (US DHHS-FDA, December 2009, Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labelling Claims http://www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/UCM193282.pdf). The new US Patient Centered Outcomes Research Institute (www.pcori.org), whose purpose is “to assist patients, clinicians, purchasers, and policy-makers in making informed health decisions by carrying out research projects that provide quality, relevant evidence on how diseases, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed”  focuses on patient’s perspectives regarding treatment and  healthcare. The UK Department of Health (DH) has introduced since 2009 the routine collection of generic and condition-specific Patient Reported Outcome Measures (PROMs) administered before and after four surgical procedures (eventually to be extended to a range of other NHS services). PROMs “…as a means of assessing effectiveness from the patient’s perspective”  are considered by the UK DH to provide  an indication of the quality of care delivered to NHS patient, with the “intention to link payments to PROMs data” (UK Department of Health, 2008, “Guidance on the Routine Collection of Patient Reported Outcome Measures (PROMs)” http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_092625.pdf )

 

PATIENT REPORTED OUTCOMES FOR GENERAL MEDICAL CONDITIONS

A Patient Reported Outcomes instrument can be used in medical diseases and conditions to measure the impact of an intervention on one or more aspects of patients’ health status ranging from the purely symptomatic (response of a disturbing experience like pain), to more complex concepts (e.g. ability to carry out abilities of daily living), to extremely complex concepts such as multidimensional quality of life, including physical, psychological, and social components.

 

PATIENT REPORTED OUTCOMES FOR MENTAL DISORDERS


The research area of Patient Reported Outcomes (PRO) in mental disorders and conditions is subjected to a disparity of development in comparison with other medical illnesses and conditions.

This disparity is  considered a severe hindrance to high quality effectiveness and comparative effectiveness research and to the development of innovative personally meaningful treatments for mental disorders.

The Third Meeting on Patient Reported Outcomes and Person Centered Care in Mental Health -  Outcomes in Mental and Addictive Disorders: Clinical, Social and Personal Perspectives, will be held in Washington D.C., at the American Association for the Advancement of Science (AAAs) on September 23-25, 2016 and will consider the clinical, public and personal perspectives in the assessment of a wide range of multilevel outcomes. The selected abstracts of the Third Meeting will be published in The Journal of Mental Health Policy and Economics, Volume 19, Supplement 1, 2016.



AIMS OF THE 2016  MEETING

 

The Third Meeting on Patient Reported Outcomes and Person Centered Care in Mental Health: Outcomes in Mental and Addictive Disorders: Clinical, Social and Personal Perspectives, is a relevant forum for the presentation of new high quality research on Patient Reported Outcomes assessment and measurement in mental and addictive disorders in the context of personal, clinical and social different perspectives and priorities in the context  of person centered and recovery oriented policies.

The research domains include:

  • New theoretical, methodological and empirical research on the differential aims, targets and perspectives of personal, clinical and social outcomes measurements.
  • New theoretical, methodological and empirical research on the representation of personal, clinical and social outcomes measurements in informing multi-level decision-making.
  • New theoretical, methodological and empirical research on item content and psychometrics of disorder-specific and general health measurements
  • Patient Reported Outcomes measurement in efficacy, effectiveness, comparative effectiveness, and cost-effectiveness research regarding interventions aimed to prevention, treatment and rehabilitation.
  • Rights and duties in the patient report, collection, storage, access, use of Patient Reported Outcomes information
  • Patient Reported Outcomes information and patient/clinician shared decision making about treatment initiation, refinement and continuation.
  • Patient Reported Outcomes information and the role of IT technology
  • Patient Reported Outcomes information monitoring and the organization and financing of treatments and services for mental and addictive disorders.

 

SUBJECT AREAS  FOR THE SUBMISSION OF ABSTRACTS

Subject areas list (not exhaustive) for the submission of abstracts of original research are listed below: 

  • Patient Reported Disorder-Specific Outcomes Measurement
  • Clinical Judgment and Outcomes Measurement
  • Patient Reported General Outcomes Measurement Used for Social Aims
  • Non-Patient Reported Measurement Used for Social Aims
  • Rights and Duties in the Provision and Access to Appropriate Education and Information about Patient Reported Outcomes
  • Patient Reported Outcomes in the Assessment of Efficacy, Effectiveness and Comparative Effectiveness of Interventions
  • Patient Reported Outcomes and Shared Decision Making on Treatment Initiation, Refinement, Continuation 
  • Patient Reported Outcomes Monitoring
  • Health Economics
  • Personal, Clinical, Social Perspectives: Coinciding, Partially Coinciding, and Conflicting Aims

Detailed list of subject areas

 

 THE JOURNAL OF MENTAL HEALTH POLICY AND ECONOMICS

 

Since 1998, The Journal of Mental Health Policy and Economics has served as a forum for publishing high quality, peer-reviewed original research studies. The first medical journal that takes account of the relationships between health economics and health policy formulation at the specialty level, it is an authoritative reference for psychiatrists, health economists, and public health researchers round the world who are seeking published original research in this field. It is the official Journal of the Section on Mental Health Economics of the World Psychiatric Association and the reference journal for the mental health sector of the International Health Economics Association (iHEA). The Journal of Mental Health Policy and Economics has been selected to be indexed by Index Medicus / Medline, Journal of Economic Literature / EconLit and ISI Social Sciences Citation Index.

ABSTRACTS PUBLICATION

The Journal of Mental Health Policy and Economics will publish the Abstracts selected for presentation at the Meeting in a Supplement of the Journal, Vol. 19 (2016). The Authors are requested to send by E-mail (Deadline: March 30, 2016) an electronic copy of their Abstract(s) to: journal@icmpe.orgusing Word for attachment. The electronic copy of the abstracts received after March 30, 2016 may not be considered for the selection of the Abstracts to be published on the Journal. 

ABSTRACTS SUBMISSION

Abstracts must be in English and in the style format required by The Journal of Mental Health Policy and Economics (please visit the website www.icmpe.org). Abstracts (no more than 500 words) must be structured (Background, Aims of the Study, Methods, Results, Discussion and Limitations, Implications for Health Care Provision and Use, Implications for Health Policies, and Implications for Further Research) on the basis of the particular content of the study. The source of funding must be indicated at the end of the abstract, along with the grant number(s). If there was no source of direct or indirect funding, please write: “Source of Funding: None Declared.”

Abstracts must be sent together with the Meeting Registration Form to the International Center of Mental Health Policy and Economics (ICMPE). The dead-line for submitting abstracts is March 30, 2016.

The text of the abstracts must be sent - by email to journal@icmpe.org. Please use Word, only text, less than 500 words: Title, authors, affiliation, structured abstract, source of funding.

In addition, The Journal of Mental Health Policy and Economics needs to receive the signed Abstract Form. Please, insert the text of the abstract in the box of the Abstract Form, sign it, scan it, and send it in PDF to journal@icmpe.org).

Please specify whether the abstract is to be presented as an Oral Communication or a Poster (max. 100 cm. wide by 150 cm high). If you authorize publication of the abstract in the Book of Abstracts and on the website www.icmpe.org, please sign the abstract form where indicated.

 

ORGANIZATION SECRETARIAT
 
International Center of Mental Health Policy and Economics
ICMPE
Via Daniele Crespi 7
20123 Milan
Italy
E-mail: info@icmpe.org
Website: www.icmpe.org

 
MEETING LANGUAGE
 
The official language of the Meeting is English.
 
MEETING VENUE


American Association for the Advancement of Science (AAAs)
1200 New York Avenue NW
Washington, D.C. 20005
USA

 

SCHEDULE


The Meeting will be held on September 23-25, 2016

September 23, 2016    3:00p.m. - 6:00p.m.          Registration
                                     6:00p.m. - 7:00p.m.          OPENING CEREMONY
                                     7:00pm                             Cocktails

September 24, 2016    9:00 a.m. - 12:30 p.m. / 2:00 p.m. - 7:00 p.m.

September 25, 2016    9:00 a.m. -   1:00 p.m. 


PRELIMINARY PROGRAM REQUEST

ICMPE,Via Daniele Crespi 7, 20123 Milano, Italy.
 

REGISTRATION

Because places and accommodations are strictly limited, you are asked to send your completed registration form as soon as possible by e-mail to info@icmpe.org  Please include your fax number and e-mail on your form.
 

REGISTRATION FEES

Before March 30, 2016 = Euro 550
After March 30, 2016 = Euro 650
On site  = Euro 700

       
MEANS OF PAYMENT

Credit Card:            Visa, American Express, Mastercard, Eurocard

 
REIMBURSEMENT

If you provide written notice of cancellation postmarked before August 20, 2016, your fee will be reimbursed less a Euro 100 handling fee.
 
SCHOLARSHIPS

Some scholarships are available for young researchers who must be under 36 years old on September 20, 2016. Nominations, together with a career summary of the applicant, should be sent by March 30, 2016 to info@icmpe.org 
 
VISA

Researchers are advised to contact their nearest consulate at least 3 months before departure, to see whether they need a visa to attend the conference in Washington DC. Do not hesitate to contact ICMPE should you require assistance with this matter.
 
INFORMATION

 

International Center of Mental Health Policy and Economics (ICMPE)
Via Daniele Crespi 7
20123 Milano, Italy
E-mail: info@icmpe.org
Website:
www.icmpe.org


 

 


ICMPE
email to: info@icmpe.org
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